No, I don't post often enough. My schedule is this:
Get up 6:30AM, get R. ready for school/myself ready for work - as soon as Todd gets home we rush out the door, I drop R. off at school, go to work, work, pick R. up from school, go home, clean the kitchen, make dinner, clean the kitchen after dinner, play with the kids/pick up the house and do laundry, give the kids baths, give H. his treatment, put the kids to bed, get in bed, fall asleep to Sex and The City Reruns, get up at 6:30 AM, repeat.
No time to socialize, take pictures, write, have relations with husband, or read books for bookclub (we don't talk about the book anymore anyway) OR BLOG!
Free Time's up! Gotta go!
P. Sunshine
My Flickr Fotos
Sunday, February 26, 2006
Tuesday, February 14, 2006
Tuesday, February 07, 2006
clinically speaking
Baby H. had his CF clinics today. For those of you not hip to the CF scene, it is the at least tri-monthly visit to the Pulmonology clinic where CF'ers get weighed, measured, cultured and evqaluated so Dr.s can note their progress and make changes to their meds/diets if needed.
The Dr.s were so elated with H's progress, that they proclaimed that he should be used as an example for a CF'er who is doing well.
That's a relief....I get really excited when I hear that news, but then I realize he's only been doing well for 9 months out of his WHOLE LIFE. We have no idea when he will start a decline, so I will take this news and feel the glory for now, dang it!!!
Now we will commence to the part of H's life that I have been dreading ever since his diagnosis. The switch to "real" foods. He's been doing so well on his special drink mix, that I am scared to make the change. CF kids require 1 1/2 times the calories of a "normal" kid's diet. This means that Todd and I will have to make sure that he gets heavy, fat-laden foods while we try to eat low-fat. I am terrified of what our grocery bill will look like. With one vegetarian, one carnivore, ane eater-of-low-fat foods and one eater-of-high-fat foods, mealtime is going to prove to be quite an interesting ordeal, indeed!
The Dr.s were so elated with H's progress, that they proclaimed that he should be used as an example for a CF'er who is doing well.
That's a relief....I get really excited when I hear that news, but then I realize he's only been doing well for 9 months out of his WHOLE LIFE. We have no idea when he will start a decline, so I will take this news and feel the glory for now, dang it!!!
Now we will commence to the part of H's life that I have been dreading ever since his diagnosis. The switch to "real" foods. He's been doing so well on his special drink mix, that I am scared to make the change. CF kids require 1 1/2 times the calories of a "normal" kid's diet. This means that Todd and I will have to make sure that he gets heavy, fat-laden foods while we try to eat low-fat. I am terrified of what our grocery bill will look like. With one vegetarian, one carnivore, ane eater-of-low-fat foods and one eater-of-high-fat foods, mealtime is going to prove to be quite an interesting ordeal, indeed!
Monday, February 06, 2006
Hayden's Heroes
I've decided to be a team captain for the Great Strides Walk for Cystic Fibrosis this year. Last year, the walk took place while H. was in the hospital, just weeks after we had discovered he had CF.
If you would like to donate, please go to this link:
http://www.cff.org/Great_Strides/PattiGunderson
or you can email me at pattisunshineAThotmail.com if you are a local and want to be a walker/funds-raiser.
I'll post more on this later as I learn more about it - gotta go give H. his treatment!!!!
If you would like to donate, please go to this link:
http://www.cff.org/Great_Strides/PattiGunderson
or you can email me at pattisunshineAThotmail.com if you are a local and want to be a walker/funds-raiser.
I'll post more on this later as I learn more about it - gotta go give H. his treatment!!!!
Thursday, February 02, 2006
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