We are now about to embark on a new adventure. Hayden has been diagnosed with Cystic Fibrosis. Todd and I were not aware that we were carriers, as it has not shown up in our family previously. Hayden is off the ICU floor and the Dr.s are working to get him to eat by mouth again. CF is a chronic illness that is survivable as long as the treatments are done daily. He will need to take enzymes before he eats ANYTHING, have treatments by nebulizer and "puffer" daily, have chest percussion therapy daily and will need to stay away from other kids with CF and kids who are sick or have a cough or cold. He needs us to become germophobes, basically, and we must constantly wash and sanitize our hands. The trick is to avoid Hayden catching any sort of lung infection, as this can be fatal to someone with CF.
As far as Hayden's progress, he is looking bright and alert and is eager to learn, he has figured out how to put his pacifyer back in his mouth! (I know, I am anti-paci, but he needs it while in the hospital, he is experiencing some major trauma!)
Thanks again to all of you for your thoughts, prayers and support. We can't wait to have our family back home together!
P. Sunshine
My Flickr Fotos
2 comments:
Wow, Patti...what a wild ride you've had in a short amount of time. We are so happy to see Hayden feeling better though. We will continue to pray for special wisdom and strength as you learn how to best care for Hayden in the days and weeks to come. We'd love to bring you some food or do some laundry or something for you...please order us around! ;)
Much love,
Molly and Myron
I am so happy you posted photos - I had visions of little Hayden in my head, and it really does help those of us that are far away to be with you in some manner! Little Hayden is so cute and beautiful - we can't wait to meet him next time we visit. We're praying you can all go home soon!
Love, Chrissy
Post a Comment